With the impending repeal of the ACA (aka Obamacare), everyone is on guard and trying to figure out what’s going to happen next with their insurance coverage. If reports on supposed amendments are true, then a substantial number of covered individuals under the ACA will lose their coverage.
Among the sectors concerned about these changes are those suffering from rare diseases. As it stands, it can already be challenging to gain eligibility for social security disability on account of a rare disease. How much more difficult it will be under the new system is a major concern for those afflicted by a rare disease.
Under the current system, being granted benefits for disability under the social security system requires proof that the individual is suffering from total and permanent disability. Typically, it can be a severe physical or mental disorder lasting anywhere from a full 12 months. In determining the level of disability, the SSA refers to the “Blue Book,” a compendium of all SSA-approved disorders and their corresponding requirements for qualification.
The requirements vary with each rare disease. Some will only require an official diagnosis, such as ALS, while others require a more stringent proof, such as showing “gross anatomical deformity” of joints in the case of fibrous dysplasia (FD). Read more on this article. http://bit.ly/2mMjuL0